I wanted to capture in my blog my issues with my breathing which dates back to January of 2018 when I got fairly sick and had a cough that was deep and hurt. After three or four days of 100+ fever, I finally went in to get it all checked out. The Dr did the normal checking, first listened to why I had come in then he looked at my ears and he asked if they hurt, I said not as much as my lungs and head. He said I had an ear infection, based on the ear he put me on antibiotics. A week or so later, I felt good enough so I went for a run and of course did a lot of coughing. We then went down to Florida for a vacation and when I tried to run with my wife I had to stop and walk after a minute of running as the cough and breathing basically stopped me from running. I recovered and tried to catch up, repeat, repeat, repeat. After we got home I tried to ramp my mileage up but the cough and breathing plagued me so I just did the Galloway run/walk but kept the running to no more than a minute. I also had a follow-up Dr appointment and he said it could just take a while longer, I asked if I had had pneumonia, he said probably but did not confirm it as with the ear infection he was giving me the same antibiotics he would have prescribed if I had it.
I proceeded to run a few marathons over the spring and summer but my breathing and coughing never went away, only by using the Galloway method was I able to get through. I am sure my coughing was a bit bothersome to my fellow runners but I was able to finish. After Grandma's I was thinking I should get it checked out again as I had just had a brother die of lung cancer and a second brother was diagnosed with lung cancer. Over the summer and fall I was seen by many Doctors (Heart was ok) and finally saw a Pulmonary Dr who checked my lungs for nodes and tested my lung capacity. Based on my lung capacity results they put me on a maintenance inhaler (Arnuity Ellipta) as she expected my results for my age to be at 120% not below average even a bit and advised me to use the emergency inhaler (Albuterol) before I ran as she said I did have mild asthma, after a month on the maintenance inhaler, they retested and the results were only a bit better so she took me off of the maintenance inhaler. We discussed Vocal Cord Dysfunction (VCD) and Gastroesophageal reflux disease (GERD) causing acid reflux and/or Laryngopharyngeal reflux (LPR) since I wasn't having heartburn all the time as other possibilities and that sometimes it can take 6 or 9 months for fully recover. So she suggested using the emergency inhaler, taking a PPI and Singulair.
For a while I thought all was improving but I noticed that things were getting worse so I went back in May of 2019, was retested, my results were below normal so they put me on Breo Ellipta, a different maintenance inhaler. I was also tested for VCD which was inconclusive and the person doing the test didn't think I had it but gave me some vocal exercises.
I know I may have posted some of this in the past but that wasn't the intent of this post, it was to document my Spirometry results and to show my current numbers so that I can track them more easier over time.
So fast forward to 2021 and my plan was to get retested so I could be off of the inhalers. Here are those numbers:
So when the doctor saw that I was at 74% for FEV1, she said she did not want me off the inhaler. I was then retested in September of this year and here are those results:
My doctor was happy to see that I had improved from 74% to 85% which is now considered to be normal with medication. So progress but I am still not pleased as I would like to be normal without the maintenance inhaler and to be able to run for miles without the walking breaks. And this last table are the results of all of my lung function tests
3 comments:
Mike, thanks for sharing all of this - even if it is for easy of record-keeping for you.
Did any of the docs mention COPD as a cause of your symptoms? There is a genetic form of this, as well as the one we usually associate with lifestyle (ie: smoking history). I had a GI doc actually test me for that years ago as part of a work-up for a funky liver result.
As someone who is now on a third inhaler thanks to COVID-19 I empathize with the desire to be able to simply run without needing inhalers. Alas, I always will due to my asthma (both allergic and exercise induced). But am a little closer to not needing to use my rescue inhaler pre-run due to the new, long-acting bronchodilator that has been added in.
Hang in there! Glad you can still get out there and enjoy running in whatever form your body allows!
Lisa,
Thanks for the note, yes they did mention it but they didn't think that was my issue at least not yet. Since with the maintenance inhalers they have me just in the normal range albeit at the low end they want to continue to monitor it for now. I haven't smoked anything in over 35 years and back then it was cigars, also no family history of COPD but in context no one typically lives long enough to be an issue. Initially they were more intrigued by having two brothers die of lung cancer but they ruled that out as a concern.
My plan is to take what I can do and keep doing it, lose more weight, continue to eat mostly right and see how it goes.
Mike,
Glad they had that on the differential; and that they ruled out cancer (lung cancer is sneaky).
You have a great plan... stay safe and maybe we will see you out on the trails.
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